Obi Light Ogbonnia
Founder & 51-Year Warrior
Our Story
Defying the Odds:
A 51-Year Journey
In the heart of Nigeria, where stigma often weighs heavier than the disease itself, Obi Ogbonnia stands as a beacon of resilience. At 51, he has defied the odds as a sickle cell warrior — in a nation where many rarely survive past their teens.
"I refused to let my condition define my destiny. No one should endure this alone."
Childhood brought isolation — relatives hid him during visits, parents forbade playdates, and schools hesitated to enrol him. Yet Obi held firm. At 19, surviving a near-fatal crisis, he made a vow. Decades later, that vow became the Obi Ogbonnia Sickle Cell Foundation — offering free genetic counselling, emergency medical funds, digital skills training, and nationwide awareness campaigns that have reached thousands of warriors and families.
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Core Programs
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Active Causes
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Nigerian Annual SCD Births
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Strategic Partners
What We Do
Our Programs
Six transformative programs addressing the holistic needs of sickle cell warriors — from healthcare access and economic empowerment to awareness, nutrition, and community voice. All aligned with the UN Sustainable Development Goals.
SDG 10 & 17
Health Insurance Premium
Providing life-saving health coverage — medications, blood transfusions, and emergency care for warriors and their families.
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SDG 2 & 3
Food Assurance Program
Delivering nutrient-dense meals and sickle cell-friendly dietary education to improve treatment outcomes for warriors and caregivers.
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SDG 1 & 8
Digital Skills Literacy Program
Empowering warriors with coding, data analysis, design, and remote work skills to achieve economic independence from home.
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SDG 3 & 17
Self-Care Awareness Program
Training warriors and families in crisis prevention, pain management, and holistic wellbeing strategies — transforming fear into confidence.
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SDG 3 & 10
Secret Santa
A heartwarming seasonal gifting initiative that ensures no sickle cell warrior feels forgotten — bringing joy and community solidarity.
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SDG 3 & 17
The Painful Truth Podcast
A bold, community-driven audio platform amplifying warrior stories, breaking stigma, and sparking national conversations about sickle cell disease.
Learn More →UN Alignment
Our SDG Commitments
Passionately aligned with 6 UN Sustainable Development Goals — because ending sickle cell suffering is inseparable from building a just and equitable world by 2030.
Reduce medical poverty by connecting 10,000 families to health insurance — eliminating catastrophic out-of-pocket healthcare costs.
Progress to 2030 Target2.5%
Provide 1 million nutrient-dense meals annually to warriors, ensuring 90% of beneficiaries show improved haemoglobin levels.
Progress to 2030 Target1.25%
Reduce under-18 sickle cell mortality by 50% through 80% hydroxyurea therapy coverage and universal access to emergency transfusions.
Progress to 2030 Target5%
Train 5,000 warriors in entrepreneurship and digital skills, targeting a 60% employment rate and 30% household income increase.
Progress to 2030 Target0.5%
Deploy 50 mobile clinics to remote areas, ensuring 70% of beneficiaries are from underserved regions with a 90% care equity satisfaction rate.
Progress to 2030 Target0.5%
Secure 50 strategic government, corporate, and NGO partnerships — including WHO — leveraging $5M in collaborative funding for scalable impact.
Progress to 2030 Target10%
Make a Difference
Support a Cause
Every contribution — no matter the size — directly transforms a warrior's life. Choose the cause that speaks to your heart.
Health Insurance Support
Provide life-saving health coverage for warriors battling chronic pain, ensuring access to medications, blood transfusions, and emergency care.
📊 Reduces preventable deaths by 60%Blood Bank Trust Fund
Secure safe, timely blood transfusions — a vital lifeline during crises. Stocks blood banks, funds testing, and transports blood to remote clinics.
📊 Protects 200+ patients annuallyDigital Skills Literacy Fund
Empower warriors with tech skills to break poverty cycles — coding, design, business, data analysis, and remote work opportunities.
📊 Trains 100+ youths annuallyWarrior-King Emergency Response
Act as a first responder during life-threatening crises — acute pain episodes, organ failure — with the speed that saves lives.
📊 Cuts response time by 75%Helping Hands & Give A Meal
Deliver nutritious meals, monthly food packs, vitamins, and supplements to malnourished warriors and vulnerable families nationwide.
📊 Shields 500+ households from hungerGiving Tuesday — Join Globally
Amplify year-end generosity every Tuesday. Doubles outreach capacity, funding clinics, education, and crisis care through matching grants.
📊 Funds 360° support for 1,000+ warriorsSponsor Data-to-Give
Bridge the digital divide by sponsoring mobile data for warriors in remote communities — enabling telemedicine, e-learning, and OOSCF support access.
📊 Connects underserved warriors digitally
Explore All Causes
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SDG 3
SDG 8
SDG 10
SDG 17
Campaign
Sickle Cell Warrior
Diversity, Equity & Inclusion Campaign
Warriors deserve equitable care regardless of background. Our DEI Campaign fights to make this a reality — funding anti-stigma education, equitable healthcare access, workplace inclusion training, advocacy, community outreach, and research.
- Anti-Stigma Education — Workshops and school programmes to dispel myths and foster acceptance
- Equitable Healthcare Access — Subsidised specialist care, pain management, and genetic counselling
- Workplace Inclusion Training — Partner with employers on flexible hours and emergency care access policies
- Advocacy & Policy Reform — Lobbying for laws ensuring Warriors' rights and equitable health funding
Corporate Partnership
Partner With Us.
Transform Lives. Build a Legacy of Hope.
In Nigeria, over 150,000 children are born with sickle cell disease annually — and 70% do not survive past their fifth birthday. Your organisation's CSR investment can change that. Align purpose with progress and join OOSCF in building a measurable, reportable social legacy.
150KAnnual SCD Births in Nigeria
70%Die Before Age 5 Without Care
6 SDGsDirectly Impacted by Your Gift
Get Involved
Be the Change Our Warriors Need
Your voice — and your time — directly transforms lives. Whether you bring medical expertise, digital skills, or simply a compassionate heart, there is a place for you in the OOSCF community.
Tell Us About Yourself
Share your background, qualifications, experience, and areas of interest to kickstart the onboarding process.
Verify Your Identity (KYV)
We conduct a secure "Know Your Volunteer" process to verify your details and issue your volunteer support code.
Get Assigned a Cause
Based on your skills and passion, we place you in a program where your efforts create the greatest impact.
🎤 Conference Opportunities
🏅 Advocacy Recognition
🤝 Community Connections
📝 Reference Letters
🌟 Volunteer Spotlight
🎁 Branded Items
Become a Volunteer →
Voices of Hope
Giving Hope Every Day
"My pain birthed a purpose. Now, let our collective strength turn survival into triumph. Every warrior deserves a chance to thrive — together, we can rewrite their stories."
— Obi Ogbonnia, Founder, OOSCF
★★★★★
"Before OOSCF, I felt completely alone in my pain. Now, with their health insurance, I receive regular treatments and I'm studying to become a nurse. They gave me a future!"
Adaobi John
Warrior — Age 22
★★★★★
"The digital skills program taught me to code. I now freelance online and earn my own income. OOSCF turned my limitations into opportunities I never imagined possible."
Chike Benson
Warrior — Age 28
★★★★★
"OOSCF's workshops taught me how to properly manage my son's crises. We are no longer gripped by fear — we are empowered with knowledge and a community that truly cares."
★★★★★
"I donate because every child deserves quality care. OOSCF's transparency consistently shows that my contributions are genuinely saving lives. That accountability is rare and deeply respected."
Knowledge Hub
From Our Blog
Introducing The Painful Truth: A Bold Voice for the Sickle Cell Community
We are calling on corporate sponsors, philanthropic organisations, and kind-hearted individuals to partner with us in keeping this podcast alive and accessible.
Read More →
Understanding Sickle Cell Disease: A Lifelong Battle for Survival and Hope
SCD disproportionately affects people of African, Mediterranean, and Middle Eastern descent. In Nigeria alone, 150,000 children are born with this condition every year.
Read More →Join the OOSCF Warrior Registry
Are you a sickle cell warrior, caregiver, or medical professional? Register on the OOSCF platform to access support services, connect with your community, and be counted in Nigeria's most comprehensive sickle cell database.
What's On
Upcoming Events
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June
World Sickle Cell Day
Annual
Awareness Campaign
World Sickle Cell Awareness Day — OOSCF Community March & Screening
Abuja, Nigeria — Nationwide
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Every Tue
Recurring Weekly
Weekly
Fundraising
Giving Tuesday — Weekly Global Giving Day for Warriors
Global — Online
TBC
2025/26
Quarterly
Outreach
Community Outreach
Free Genotype Screening & Sickle Cell Awareness Outreach Drive
Multiple States, Nigeria
Learn More →
Take Action Today
Every Action You Take
Saves a Warrior's Life.
Whether you donate, volunteer, partner, register, or simply share — your involvement creates a ripple of hope across Nigeria's sickle cell community. The time to act is now.
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CBN-registered charitable foundation
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Aligned with UN SDGs
Stay Connected
Follow Our Journey
Stay updated on our programs, events, and warrior stories across all platforms.