Improving healthcare access for underserved sickle cell patients. Join us in transforming lives today.
In the heart of Nigeria, where the weight of stigma often outweighs the promise of potential, Obi Ogbonnia stands as a beacon of resilience. At 51, he has defied the odds as a sickle cell warrior in a nation where many with sickle cell disease (SCD) rarely survive past their teens. His journey—marked by pain, rejection, and unyielding courage—is a testament to the power of turning adversity into action.
Born into a world that misunderstood his condition, Obi’s childhood was shadowed by societal scorn. Labeled a “curse” by whispers in his community, he faced rejection at every turn. Relatives hid him during visits, friends’ parents forbade playdates, and schools hesitated to enroll him, fearing his crises would “disrupt” classrooms. Nights were haunted by agonizing pain crises, and days by isolation—yet Obi clung to hope. Today, Obi’s foundation transforms lives. Through free genetic counseling, emergency medical funds, and nationwide awareness campaigns, OOSCF has reached thousands.
At 19, after surviving a near-fatal crisis that left him hospitalized for weeks, Obi made a vow: No one should endure this alone. Years later, armed with unwavering resolve, he founded the Obi Ogbonnia Sickle Cell Foundation, a sanctuary for warriors like himself. The foundation’s mission? To dismantle stigma, provide life-saving care, and empower Nigeria’s SCD community.
“I refused to let my condition define my destiny,” he recalls……read more
In Nigeria, over 150,000 children are born with sickle cell disease (SCD) annually—a genetic condition that claims 70% of these young lives before their fifth birthday. Behind these numbers are families shattered by stigma, poverty, and preventable suffering. But there is hope. Today, we invite your organization to join this transformative journey through Corporate Social Responsibility (CSR)—a partnership where compassion meets impact, and purpose aligns with progress.
Sickle cell disease (SCD) is a group of inherited blood disorders that profoundly alter the shape and function of red blood cells. Affecting millions globally, this condition is a stark example of how genetic mutations can disrupt lives while also driving groundbreaking medical advancements. SCD stems from a genetic mutation in the HBB gene, which produces hemoglobin—the oxygen-carrying protein in red blood cells. This mutation causes hemoglobin to form rigid, crescent-shaped cells that obstruct blood flow, leading to tissue damage, pain, and severe complications. Here’s a closer look at its causes, challenges, and the evolving landscape of treatment.
SCD stems from a genetic mutation in the HBB gene, which produces hemoglobin—the oxygen-carrying protein in red blood cells. Read More…
Support Sickle Cell Warriors by purchasing this book. Each purchase is equivalent to three copies. You receive one hard copy, and the sickle cell warrior gets a second copy. 70% of the funds for the third copy are used to support one of our causes, while 30% is reserved for the book’s author.
SDG 10 & 17
SDG 3 & 2
SDG 3 & 17
Warriors deserve equitable care regardless of background, Our Sickle Cell Warrior DEI Campaign fights to make this a reality. Join us in creating a more just healthcare landscape for all sickle cell warriors.
📚 Anti-Stigma Education: Fund workshops and school programs to dispel myths about sickle cell disease, fostering acceptance and reducing discrimination.
🏥 Equitable Healthcare Access: Subsidise specialised care, pain management, and genetic counselling for underserved communities.
💼 Workplace Inclusion Training: Partner with employers to create sickle cell-friendly policies (flexible hours, emergency care access).
🗣️ Advocacy & Policy Reform: Lobby for laws ensuring Warriors’ rights protections and equitable health funding aligned with SDG 10.
🌍 Community Outreach: Organize cultural events and storytelling platforms to amplify warriors voices and promote inclusion.
At the Obi Ogbonnia Sickle Cell Foundation, we are passionately driven by a program structure aligned with 6-SDGs. Our events and calls for donations are powerful steps towards creating a sustainable world by 2030. Together, we can make a difference—your support is invaluable!
“Every child with sickle cell deserves a life of dignity, not despair. Our SDG alignment is a roadmap to turn their pain into power.
2030 Target:
Lift 10,000 families out of medical poverty through our health insurance program and blood bank trust fund donations.
KPIs:
80% reduction in out-of-pocket medical expenses for enrolled families.
5,000 Sickle Cell Warriors linked to income-generating opportunities.
Persons Impacted: 250+ (children + households).
2030 Target:
Provide 1 million nutrient-dense meals annually.
KPIs:
Persons Impacted: 125 children + caregivers.
2030 Target:
Reduce under-18 sickle cell mortality by 50%..
KPIs:
80% coverage of hydroxyurea therapy for eligible children.
100% access to emergency blood transfusions.
Persons Impacted: 50 children
2030 Target:
Train 5,000 caregivers in entrepreneurship/digital skills.
KPIs:
Persons Impacted: 25 children (Warriors ++ dependents)
2030 Target:
Ensure 70% of beneficiaries are from underserved regions.
KPIs:
Persons Impacted: 25 children (Warriors ++ dependents)
2030 Target:
Secure 50 strategic partnerships (govt, corporate, NGOs) including World Health Organization.
KPIs:
$5M leveraged through collaborative funding.
100% alignment of programs with national health policies.
Persons Impacted:Indirectly all OOSCF beneficiaries.
Impact-Driven Donation Opportunities.
At the Obi Ogbonnia Sickle Cell Foundation, we have the passion, structure, and transparency to make a lasting impact for sickle cell warriors. We need your support.
Aligned with Nigeria’s National Sickle Cell Strategy & UN SDGs. 🌍✨
Provide life-saving health coverage for warriors battling chronic pain and complications.
Impact: Ensures access to medications, blood transfusions, and emergency care, reducing preventable deaths by 60%.
Secure safe, timely blood transfusions—a lifeline during crises. Stocks blood banks, funds testing, and transports blood to remote clinics.
Impact: Prevents strokes, organ damage, and fatalities for 200+ patients yearly.
Empower warriors with tech skills to break poverty cycles.
Impact: Trains 100+ youths annually in coding, design, business and data analysis, and remote work, unlocking economic independence.
Act as a first responder during life-threatening crises.
Impact: Cuts emergency response time by 75%, saving lives during acute pain episodes or organ failure.
Deliver nutritious meals to malnourished warriors and families.
Impact: Improves treatment outcomes and shields 500+ households from hunger yearly.
Provides monthly food packs, vitamins, and supplements for vulnerable children.
Join the Global givers every Tuesday. Amplify year-end generosity to sustain all OOSCF programs.
Impact: Doubles outreach capacity during peak need, funding clinics, education, and crisis care.
What Your Donation Does: Unlocks matching grants and fuels 360° support for 1,000+ warriors.
Your voice matters in the fight against sickle cell disease. By volunteering with us, you directly impact lives, amplify underrepresented voices, and help create equitable healthcare access for all warriors. Whether you have medical expertise or simply compassion, your time transforms pain into hope and isolation into community.
1
We kindly request a summary of your background, qualifications, experience, and areas of interest to better facilitate Volunteer onboarding process.
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We conduct a ‘Know Your Volunteer’ (KYV) process to verify your details and identity and to issue a volunteer support code.
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With your skills, area of interest, and expertise, we assign you to a program and a cause to help the organization achieve its mission, vision, and Annual goals.
“My pain birthed a purpose. Now, let our collective strength turn survival into triumph.” Stand with Obi and Nigeria’s sickle cell warriors. Because no one should fight alone. Every warrior deserves a chance to thrive,” “Together, we can rewrite their stories.
Warrior: Age 22
“Before OOSCF, I felt alone in my pain. Now, with their health insurance, I get regular treatments and am studying to be a nurse. They gave me a future!”
Warrior: Age 28
“The digital skills program taught me coding. I now freelance online, earning my own money. OOSCF turned my limitations into opportunities.”
CareGiver: Mother
“OOSCF’s workshops taught me how to manage my son’s crises. We’re no longer afraid—we’re empowered.”
Donor: Individual
“I donate because every child deserves care. OOSCF’s transparency shows my contributions truly save lives.”
To keep this podcast alive and accessible, we are calling on corporate sponsors, philanthropic organizations, and kind-hearted individuals to partner with us.
SCD disproportionately affects people of African, Mediterranean, and Middle Eastern descent. In the U.S., 1 in 365 Black newborns has SCD, compared to 1 in 16,300 Hispanic Americans9. Globally, over 8 million are affected, with Nigeria alone accounting for 150,000 annual births.
Born into a world that misunderstood his condition, Obi’s childhood was shadowed by societal scorn. “I refused to let my condition define my destiny,” he recalls…
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